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Apr 16, 2023Liked by Long Covid Advocacy

Sajid Javid expanded MECFS GWAS study to include 5K people with long covid - research aimed at

making meaningful improvement.

NICE reviewed the MECFS non- pharmacological research and found it "low or very low" quality - unusable -- This study continues that pattern of funding very low quality/unusable research -- NIHR and UK Research and Innovation (UKRI) - https://www.nihr.ac.uk/news/first-findings-from-worlds-largest-study-on-long-covid-in-children-and-young-people/28572

Try to get APPGs to put pressure on Health Minister to end this waste of public money ---funding very low quality/unusable research --

Offensive to people who are ill ---

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Apr 14, 2023Liked by Long Covid Advocacy

Nailed it

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