Report reveals systemic neglect, missing data, and vanishing services — raising critical questions about accountability, reform, and the future of care in the UK.
It upsets me to be reminded of how thoughtless people can be. Thank you for sharing this true picture.
Hopefully patient power will not loose momentum.Use the resources at their fingertips to keep on keeping on. So that the missing millions becomes visible and the right research is invested in to develop the best possible recovery sooner rather than later.
Because we all know Covid hasn't finished with us yet and we don't want the missing millions to become the missing billions.
My husband always said it wouldn't be a nuclear bomb that ended us it would be a virus😢 I for one really don't want that, so please keep going and thank you again 💙💙💙
I suspect it's little different in Scotland, although it's hard to know without even the low level of transparency and accountability found in England. As someone living with LC for the past five years, what I can say is that it feels like the system (politics, media, the NHS, wider society) want us to shut up, **** off and harden the **** up. I've been blogging about my experiences working in the NHS, developing Covid and then living with Covid for more than five years now. I've passed my experiences to MSPs, committees, inquires and more. It's just shouting into a void. The barriers are enormous and, in my experience, getting worse. I was discharged by NHS Grampian's LC clinic recently: I haven't recovered but there's nothing further to be done. From my involvement with an LC support group, this is a common experience. We should just go away.
It upsets me to be reminded of how thoughtless people can be. Thank you for sharing this true picture.
Hopefully patient power will not loose momentum.Use the resources at their fingertips to keep on keeping on. So that the missing millions becomes visible and the right research is invested in to develop the best possible recovery sooner rather than later.
Because we all know Covid hasn't finished with us yet and we don't want the missing millions to become the missing billions.
My husband always said it wouldn't be a nuclear bomb that ended us it would be a virus😢 I for one really don't want that, so please keep going and thank you again 💙💙💙
Thank you Catherine 💙
I suspect it's little different in Scotland, although it's hard to know without even the low level of transparency and accountability found in England. As someone living with LC for the past five years, what I can say is that it feels like the system (politics, media, the NHS, wider society) want us to shut up, **** off and harden the **** up. I've been blogging about my experiences working in the NHS, developing Covid and then living with Covid for more than five years now. I've passed my experiences to MSPs, committees, inquires and more. It's just shouting into a void. The barriers are enormous and, in my experience, getting worse. I was discharged by NHS Grampian's LC clinic recently: I haven't recovered but there's nothing further to be done. From my involvement with an LC support group, this is a common experience. We should just go away.