Had an abominable experience with the aforementioned Cambridgeshire LC clinic. Couldn't help but wonder if anyone was controlling their work. If someone had ever told me what I'd experience with them, I wouldn't believe them. Awful is an understatement.
My hope is that with more people recovering and regaining their abilities, some will choose to use some of their spoons for patient advocacy. I hope to be one of them.
On a more related note to your post, Cambridgeshire LC clinic recommends Raelan Agle - yet another charlatan selling brain retraining programmes and advertising highly questionable dietary practices.
Appreciate your sharing this, as I have been very frustrated with my experiences with Curable, Nicole Sachs and everyone in the “Mind Body Syndrome” (aka BPS) community. I wasted years on their methods for healing my CFS and particularly resent the implication that illness is my fault
I had amazing help from my Long Covid Clinic in the north west (now shut down). Pacing and activity management along with lots of rest, breathing exercises, progressive muscle relaxation, meditation and avoiding negative feedback cycles calmed a lot of my most unpleasant symptoms down and stopped my fatigue getting worse and I started getting better (very very very slowly).
Great article, thanks for sharing it.
Had an abominable experience with the aforementioned Cambridgeshire LC clinic. Couldn't help but wonder if anyone was controlling their work. If someone had ever told me what I'd experience with them, I wouldn't believe them. Awful is an understatement.
So sorry to hear this. Their presentation slide at the Long Covid NHS Conference does not inspire confidence.
My hope is that with more people recovering and regaining their abilities, some will choose to use some of their spoons for patient advocacy. I hope to be one of them.
On a more related note to your post, Cambridgeshire LC clinic recommends Raelan Agle - yet another charlatan selling brain retraining programmes and advertising highly questionable dietary practices.
Appreciate your sharing this, as I have been very frustrated with my experiences with Curable, Nicole Sachs and everyone in the “Mind Body Syndrome” (aka BPS) community. I wasted years on their methods for healing my CFS and particularly resent the implication that illness is my fault
I had amazing help from my Long Covid Clinic in the north west (now shut down). Pacing and activity management along with lots of rest, breathing exercises, progressive muscle relaxation, meditation and avoiding negative feedback cycles calmed a lot of my most unpleasant symptoms down and stopped my fatigue getting worse and I started getting better (very very very slowly).